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279 - maxvanmanen.com

Health Research online version of this article can be found at: DOI: 2014 24: 279 originally published online 27 January 2014 Qual Health ResMichael A. van ManenOn Ethical (In)Decisions Experienced by Parents of Infants in Neonatal Intensive Care Published by: can be found at:Qualitative Health ResearchAdditional services and information for Alerts: : : : What is This? - Jan 27, 2014 OnlineFirst Version of Record - Feb 11, 2014 Version of Record >> at UNIVERSITY OF ALBERTA LIBRARY on May 2, from at UNIVERSITY OF ALBERTA LIBRARY on May 2, from Qualitative Health Research2014, Vol. 24(2) 279 287 The Author(s) 2014 Reprints and permissions: : the neonatal intensive care unit (NICU), the newborn child is the central concern of moral ethical decision making. The child, who is vulnerable and without auton-omy, relies on the parents and health professionals for ethical decisions regarding medical interventions (Miller, 2007).

280 Qualitative Health Research 24(2) happens at the bedside, where competing factors fre-quently exist. This literature also does not reveal how parents may be relationally informed and directed by

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