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ORARC Tip Sheet: INCLUSIVE DEMOGRAPHIC DATA …

If you share or use this Tip sheet , please credit its content to the Office of Regulatory Affairs and Research Compliance ( ORARC ) v4/20/2020 ORARC Tip sheet : INCLUSIVE DEMOGRAPHIC data COLLECTION Purpose: The purpose of this tip sheet is provide researchers with guidance on how to collect DEMOGRAPHIC data from participants in an INCLUSIVE , representative way. Recommended Practices: 1. In order to uphold the Belmont Report ethical principles of respect for persons (treating humans with respect), beneficence (do no harm), and justice (representative sample), researchers should give careful thought to the options provided to participants when collecting DEMOGRAPHIC data . 2. Researchers must balance the protection of human subjects when including underrepresented populations - namely, minimizing risks to subjects vs. exploitation of vulnerable populations. 3. Researchers should assess whether or not this information about participants is needed to accomplish the goals/aims of the study.

Collection Standards For Race, Ethnicity, Sex, Primary Language, And Disability Status o Office of Management and Budget (OMB); Federal guidance on Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity o U.S. Surveillance (GenIUSS) Group 2014 Survey - Best Practices for Asking Questions

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