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ORARC Tip Sheet: INCLUSIVE DEMOGRAPHIC DATA …

If you share or use this Tip sheet , please credit its content to the Office of Regulatory Affairs and Research Compliance ( ORARC ) v4/20/2020 ORARC Tip sheet : INCLUSIVE DEMOGRAPHIC data COLLECTION Purpose: The purpose of this tip sheet is provide researchers with guidance on how to collect DEMOGRAPHIC data from participants in an INCLUSIVE , representative way. Recommended Practices: 1. In order to uphold the Belmont Report ethical principles of respect for persons (treating humans with respect), beneficence (do no harm), and justice (representative sample), researchers should give careful thought to the options provided to participants when collecting DEMOGRAPHIC data . 2. Researchers must balance the protection of human subjects when including underrepresented populations - namely, minimizing risks to subjects vs. exploitation of vulnerable populations.

categories where inclusive options should be provided. See below for suggestions. 4. Regardless of the specific options, consider the following when designing a survey/study: a. Give the participant the option to skip, omit, and/or not respond to any question they do not wish to answer. b. Do not force a response/choice on any demographic question.

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