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ORIGINAL INVESTIGATION Genetic Counseling and Testing in ...
Genetic Counseling and Testing in FamiliesWith Hereditary Nonpolyposis Colorectal CancerDonald W. Hadley, MS; Jean Jenkins, PhD, RN; Eileen Dimond, MS, RN; Kenneth Nakahara, BS;Liam Grogan, MD; David J. Liewehr, MS; Seth M. Steinberg, PhD; Ilan Kirsch, MDBackground: Genetic Testing to refine cancer risk is avail-able. However, little is known about factors affecting theuptake of Testing for the most common hereditary coloncancer, hereditary nonpolyposis colorectal cancer. Thisstudy investigated attitudes, intentions, and uptake ofgenetic Testing within newly identified families with he-reditary nonpolyposis colorectal :Cohort study conducted at the NationalInstitutes of Health between April 15, 1996, andNovember 20, 1999.
plete a baseline questionnaire, receive genetic education and counseling pertaining to HNPCC, and participate in tele-phone interviews at 6 and 12 months after the intervention.
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