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The new EU Regulation on the protection of …

The new EU Regulation on the protection of personal data : what does it mean for patients? A guide for patients and patients' organisations Contents 1. Introduction .. 3. Why data protection rules matter for patients with chronic and long term conditions .. 3. Why a new Regulation ? .. 4. When will it apply? .. 5. Important concepts in data protection .. 6. 2. How are patients' health and genetic data protected by the EU legislation? .. 7. General principles .. 7. In which circumstances can patients' health and genetic data be processed? .. 8. Rules for consent .. 10. Zoom on what it means .. 11. 3. what are the rights provided by EU law to patients regarding their data ? .. 13. 4.

5 The new EU Regulation on the protection of personal data: what does it mean for patients? Currently the Directive on general data protection of 1995 is in application

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