User’s Guide to Implementing Patient-Reported …

1 user s Guide to Implementing Patient-Reported Outcomes assessment in Clinical Practice Version 2: January 2015 Produced on behalf of the International Society for Quality of Life Research by (in alphabetical order): Neil Aaronson, PhD Thomas Elliott, MD Joanne Greenhalgh, PhD Michele Halyard, MD Rachel Hess, MD Deborah Miller, PhD Bryce Reeve, PhD Maria Santana, PhD Claire Snyder, PhD International Society for Quality of Life Research 2 What are your goals for collecting PROs in your clinical practice and what resources are available? Which key barriers require attention? ..4 Which groups of patients will you assess? ..7 How do you select which questionnaire to use? ..11 How often should patients complete questionnaires? Should it be tied to visits or a way to follow patients between visits? ..14 How will the PROs be administered and scored? ..17 What tools are available to aid in score interpretation and how will scores requiring follow-up be determined?

1 User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice Version 2: January 2015 Produced on behalf of the International Society for Quality of Life Research by

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