Hyatt Regency Aurora-Denver Conference Center ... …

1 Final Page 1 2018Sj gren s Syndrome FoundationNational Conference Brochure x 11 > x 11 4/4, Full-Bleed C M Y Kv Parkridge Blvd., Ste 170 Reston, VA 20191 Refund requests must be made in writing. Registrants whose written requests are received by March 26th will receive a 75% refund. After that time, we are sorry that no refunds can be made. Dietary Requests: Unfortunately, we cannot accommodate all special dietary requirements. We can accommodate vegetarian or gluten-free dietary requests. A limited number of rooms are available, on a fi rst-come basis, at the Hyatt Regency Aurora-Denver Conference Center (13200 East 14th Place, Aurora, Colorado 80011) at the SSF rate of $132 per night plus tax if reservations are made by March 22, 2018. Call the toll-free hotel Central Reservations number at 1-888-591-1234 or call the Hyatt Regency Aurora-Denver Conference Center directly at 1-303-365-1234 and refer to the group name Sj gren s Syndrome Foundation for the discounted rate.

2 The Hyatt Regency Aurora-Denver Conference Center is approximately 16 miles from the Denver International PAYMENT Mail to SSF, c/o BB&T Bank PO Box 890612 Charlotte, NC 28289-0612 or Fax to: 301-530-4415 Enclosed is a check or money order (in funds only, drawn on a bank, net of all bank charges) payable to SSF. MasterCard VISA Discover AmEx Card Number _____ Exp. Date _____Signature _____ CC Security Code _____1 ATTENDEE complete for each registrantAttendee Name(s) _____Attendee Name(s) _____Street Address _____City _____ State _____ Zip _____Telephone _____ E-mail _____2 FEES please circle appropriate fee(s) (Note: Early Bird Deadline is March 21, 2018) March 21st and before March 22nd and afterSSF Members & Guests $170 per person $190 per personNon-Members $190 per person $210 per person TOTAL: Space is limited. Please register early!Registration FormRegistration fees include: Friday evening dinner, Saturday s lunch, hand-out material from speakers and entrance to exhibit area on Friday and NATIONAL PATIENT CONFERENCEH yatt Regency Aurora-Denver Conference Center , ColoradoApril 13 14, 2018 QUESTIONS?

3 Call 800-475-6473 or visit I would like a vegetarian meal I would like a gluten-free mealApril 13-14, 2018 Hyatt Regency Aurora-Denver Conference Center13200 East 14th Place, Aurora, Colorado2018 National Patient ConferenceExploring Sj gren sAnother exciting Sj gren s patient Conference is on the horizon. Plan to join fellow Sj gren s patients at our National Patient Conference this spring in Aurora, Colorado just outside of Denver! This exciting and informative two-day pro-gram will feature an array of presentations from leading Sj gren s experts who will help you understand how to manage all key as-pects of your topics will include: Sj gren s Overview Dermatological Issues and Sj gren s Lymphoma: Risk, Treatment and Prognosis Joint Pain and Sj gren s Oral Manifestations of Sj gren s Ocular Manifestations of Sj gren s Clinical Trials Update Tips for Comfortable Living How the Central Nervous System Can Impact Sj gren s The State of Sj gren s.

4 Transforming the FutureExploring Sj gren s2018 National Patient ConferenceApril 13 14, 2018 Hyatt Regency Aurora-Denver Conference Center13200 East 14th Place, Aurora, ColoradoHow the Central Nervous System Can Impact Sj gren s13200 East 14th Place, Aurora, ColoradoJoin Usin DenverFinal Page 2 2018Sj gren s Syndrome FoundationNational Conference Brochure x 11 > x 11 4/4, Full-Bleed C M Y Kv , April 13, 2018 12:30pm Registration and Exhibit Area Opens2:00pm Welcome and Opening Remarks Stephen Cohen, OD, SSF Chairman of the Board2:15pm Sj gren s Overview Chadwick R. Johr, MD, is an Assistant Professor of Clinical Medicine in the Division of Rheumatol-ogy at the University of Pennsylvania. He is also the Co-Director of the Penn Sj gren s Center and has a special interest in caring for patients with Sj gren s. Dr. Johr will present a compre-hensive explanation of the range of symptoms that Sj gren s patients experience, explain their causes, and offer treatment options and practical tips for managing :05pm Ocular Manifestations of Sj gren s Stephen Cohen, OD, a private practice optometrist in Scottsdale, Arizona, since 1985, will describe the latest dry eye therapeutic treatments, covering the extensive range of options from artifi cial tears to silicone plugs to systemic drugs that are available for managing the ocular complications of Sj gren s.

5 Dr. Cohen is a past-president of the Arizona Optometric Association and is the current Chairman of the SSF Board of Directors. 3:45pm The State of Sj gren s: Transforming the Future Steven Taylor, SSF Chief Executive Offi cer The Sj gren s Syndrome Foundation (SSF) has been embarking on new initiatives that are real-izing huge advancements for Sj gren s patients. From clinical trials for new therapies, to research to unlock the mystery of Sj gren s, Steven Taylor, CEO of the SSF, will share with us what is on the horizon for Sj gren s patients. Following his talk, Mr. Taylor will lead a panel discussion with:Janet Church, SSF Chairman-ElectStephen Cohen, OD, SSF Chairman of the BoardKen Economou, SSF Immediate Past Chairman The panelists will discuss the leadership of the SSF, talking about where we have been, where we are now, and where we plan to go in the future!4:45pm Product Showcase Sj gren s patients use a number of over-the-counter products to treat their various complications.

6 During this session, we will highlight the vast array of prod-ucts that are available for Sj gren s patients. You won t want to miss this informative and helpful talk!5:00pm Break and Exhibits6:30pm Banquet Awards Dinner and Keynote Speaker Darlene F. Cross, MS, LMFT, is a Licensed Mar-riage and Family Therapist in Henderson, Nevada, with 20 years in private practice. Darlene is also the author of the Amazon Best Seller, A New Normal: Learning to Live with Grief and Loss. Addi-tionally, she is the author of Reinventing Normal: How Choice and Change Shape Our Lives. We are delighted to have Darlene Cross as our 2018 Keynote Speaker who will speak as a clinician who works with people coping with an array of losses, including loss through chronic ill-ness, a subject she knows well being a Sj gren s patient herself. In addition, join us for this inspirational evening as we present our National Awards to vol-unteers, groups and organizations that have helped to further the mission of the Sj gren s Syndrome :40am Tips for Comfortable Living Do you have a tip for living with Sj gren s?

7 Have you found a great way to cope with your Sj gren s? Bring your ideas to our Conference and be ready to share them! We will be asking a few patients to join us on stage to share some practical tips for coping with the day-to-day symptoms of this chronic :10am Walk For Sj gren s Participants are encouraged to join us for our national Walk For Sj gren s event where patients and family members come together to stand up for Sj gren s! You can walk, support, or cheer on your fellow friends as we take a stroll outside the :00pm Lunch and Exhibits 1:05pm Joint Pain and Sj gren s Donald E. Thomas, Jr., MD, has a special interest in systemic autoimmune diseases, especially Sj gren s and lupus. He is in private practice in Maryland, but he also enjoys teaching health care providers about Sj gren s. He is passionate about empowering patients, and he is the author of the patient education book, The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families.

8 Dr. Thomas will add to your understanding of the many causes of joint pain and will offer tips to help you cope as well as treatment , April 14, 2018 8:30am Registration and Exhibit Area Opens9:00am Opening Remarks9:15am How the Central Nervous System Can Impact Sj gren s Edward Maitz, PhD, is a Diplomate in Clinical Neu-ropsychology and is also Board Certifi ed in cogni-tive rehabilitation and biofeedback training. Dr. Maitz is in full time private practice in Pennsylvania and New Jersey, and has faculty appointments at Drexel University College and Widener University. He has a special interest in Sj gren s and has published articles in the fi eld, and is a member of the SSF Clinical Practice Guidelines Committee. Dr. Maitz will share his vast knowledge about the physical, cognitive ( brain fog ), and psychological manifestations of Sj gren :55am Lymphoma: Risk, Treatment and Prognosis Richard F. Ambinder, MD, PhD, currently serves as the James B.

9 Murphy Professor of Oncology and the Director of the Division of Hematologic Malig-nancies at the Johns Hopkins Kimmel Cancer Center . Dr. Ambinder is active in the treatment of lymphoma and is the Co-Leader of the SSF s Lymphoma Clinical Practice Guidelines group. Dr. Ambinder will clear away the confusion surround-ing lymphoma and Sj gren s, defi ning the risks to Sj gren s patients and outlining the symptoms, treatment, and :45pm Oral Manifestations of Sj gren s Ava J. Wu, DDS, is Clinical Professor, Depart-ment of Orofacial Sciences, School of Dentistry, University of California, San Francisco, where she is Director of the Sj gren s Syndrome Clinic. Dr. Wu s presentation will provide insights into how Sj gren s impacts your oral health as well as information to help manage and minimize the effects of dry mouth issues. After seeing thou-sands of patients in her career, Dr. Wu will deliver the answers that you have been waiting to :25pm Clinical Trials Update Every day research is being conducted to unveil new medications, therapies and diagnostic tools for Sj gren s.

10 Join us for this informative presen-tation about how clinical trials add to our medical knowledge and, most importantly, the result of these trials can make a difference in the care and treatment of Sj gren s :00pm Dermatological Issues and Sj gren s Natalie Wright, MD, is a board certifi ed dermatol-ogist practicing in Dallas, Texas, who specializes in the diagnosis and management of autoimmune conditions of the skin. She manages the skin manifestations of lupus, Sj gren s, dermato-myositis, systemic sclerosis, sarcoidosis, and psoriasis, in addition to skin cancer and general dermatologic conditions. She completed special-ized training in these disorders at Harvard Medi-cal School and Brigham and Women s Hospital in Boston. Sj gren s patients can present with a variety of skin disorders that Dr. Wright takes special interest in diagnosing and :40pm Conference Recap and Closing Remarks Stephen Cohen, OD, SSF Chairman of the BoardSteven Taylor, SSF Chief Executive Offi cer4:00pm Conference Adjourns Steven Taylor, SSF Chief Executive Offi cer The Sj gren s Syndrome Foundation (SSF) has Natalie Wright, MD, is a board certifi ed dermatol- Edward Maitz, PhD, is a Diplomate in Clinical Neu- Donald E.