2019 - post-polio.org

1 2018. Post-Polio Directory 2018 . 1 Introduction 2 International health Professionals and Support Organizations 11 United States health Professionals and Support Organizations 27 Other Useful Contacts Post-Polio Directory 2018 is for information purposes only. A listing does not imply endorsement by Post-Polio health International. Copyright 2018 by Post-Polio health International (PHI). All rights reserved. No part of this publication may be reproduced or transmitted in any form without permission in writing from the copyright holder. Additions and corrections may be sent to Printed copies are $15 each at 4207 Lindell Blvd., #110, Saint Louis, MO 63108-2930 USA. 314-534-0475, 314-534-5070 fax , UPDATED 4-23-18. Introduction: PHI, then Gazette International Networking Institute, published its first Post-Polio Directory in 1985 to assist survivors of polio who were experiencing the late effects of polio to find health professionals. At the 1983 Conference, the organization was charged with encouraging the formation of local support groups and the current Post-Polio Directory includes those groups, too.

2 How it is organized: There are three sections. 1) International health Professionals and Support Organizations, which are organized alphabetically by country with health professionals listed first in alphabetical order by city, followed by support groups listed by alphabetical order by city. 2) United States health Professionals and Support Organizations, which are organized alphabetically by state with health professionals listed first in alphabetical order by city, followed by support groups listed in alphabetical order by city. 3) International and US Other Useful Contacts listed by topical areas. How to use it: Post-Polio health International's comprehensive websites ( , , ) contain years of information about the late effects of polio and are continually updated. The Post-Polio Directory is a good place to start to find local resources. Support groups also may be able to suggest names of local health professionals. Another option is to contact a physiatrist physician specializing in physical medicine and rehabilitation, or a rehabilitation center.

3 A few rehabilitation centers stated that while they don't have a post-polio clinic, they are confident that their staff of rehabilitation professionals has sufficient knowledge and experience with treating neuromuscular diseases (or disabling neuromusculoskeletal conditions). to be able to successfully treat polio survivors. Articles of interest: Polio Doctors, Post-Polio Clinics, Options When a Post-Polio Clinic is not an Option (pages 36-39). Support Groups , Post-Polio Support Group Resources How to join PHI: Post-Polio health International is a Membership organization. To support its activities, join PHI at or by printing out a Membership form. Post-Polio Directory is free with Contributor and Sustainer Memberships. Post-Polio Directory 2018 1. International health Professionals and Support Organizations *Post-Polio Clinic AUSTRALIA health Professionals Polio Polio Victoria Inc. Ross House, 247-251 Flinders Lane *Mt Wilga Private Hospital Melbourne, Victoria 3000.

4 66 Rosamond St +61 431 702 137, Hornsby, new south wales 2077 +61 2 9847 5000, +61 2 9477 1253 fax Mornington Peninsula Post-Polio Support Group Frances Henke Stephen de Graaff, MB, BS, FRACM, FAFRM Mornington, Victoria Director of Pain Services Epworth Rehabilitation 888 Toorak Rd Polio NSW Inc Camberwell, Victoria 3124 Gillian Thomas +61 3 9809 2444, +61 3 9889 6756 fax PO Box 2799. North Parramatta, NSW 1750. *Polio Services Victoria, Melbourne +61 2 9890 0946. Russel Anbiah, Physiotherapist St. Vincent's Hospital Melbourne PO Box 2900, Bolte Wing, Nicholson St Post-Polio Network of Western Australia Fitzroy, Victoria 3065 Tessa Jupp, RN. +61 3 9288 3900, +61 3 9288 3808 fax PO Box 257. Subiaco, Western Australia (Floreat area). +61 8 9383 9050, +61 8 9383 9075 fax *Post-Polio Network of Western Australia Clinic John S. Niblett, MBBS FRACR FAChPM ~poliowa Tessa Jupp, RN. Brenda Lake, PT Post Polio Networks (Qld). PO Box 257 Spinal Injuries Association Subiaco, Western Australia (Floreat) 109 Logan Road +61 8 9383 9050, +61 8 9383 9075 fax Woolloongabba Queensland 4102.

5 PO Box 5651. ~poliowa West End, Queensland 4101. +61 7 3391 2044. AUSTRALIA Support Groups Polio Network Victoria AUSTRIA Support Group Independence Australia Community Solutions 208 Wellington St Selbsthilfe Polio Post-Polio Syndrome Collingwood, Victoria 3066 +61 3 1300 704 456, +61 3 1300 704 451 fax BANGLADESH health Professional Dr. Raju Dhakal 15 groups Chairman at Dept. of Physical Medicine and Rehab. Bangabandhu Sheikh Mujib Medical University Polio Australia Incorporated Room , Block-C. PO Box 500, Kew East, Victoria 3102 Shahbag, Dhaka-1000. Ste 119C, Level 1, 89 High Street Kew, Victoria 3101. +61 3 9016 7678, BELGIUM Support Groups European Polio Union Walvisstraat 32. B 2018, Antwerp 2 Post-Polio Directory 2018 PostPolio Belgi Elizabeth Dean, DipPT, BA, MS, PhD. Johan Bijttebier Department of Physical Therapy Nachtegaalstraat 47 University of British Columbia 2060 Antwerpen 212 Friedman Building, 2177 Wesbrook Mall +32 3 288 7794, +32 3 226 2315 fax Vancouver, BC V6T 1Z3.

6 604-822-7398, Association belge des Paralyses ABP asbl Chauss e de Gand 1434 CANADA Support Groups B-1082 Brussels (Alphabetical order by province). +32 2 421 69 62, Southern Alberta Post-Polio Support Society 403-813-9583, BRAZIL health Professionals Sergio Silva de Mello, Anesthesiology Southern Alberta Post-Polio Support Rua Rio de Janeiro n 1881 Society-Lethbridge 1301, Belo Horizonte 403-329-9453, *Federal University of Sao Paulo's Medical School Wildrose Polio Support Society Dr. Acary Oliveira, Chief, Neurology Dept Glyn Smith Tatiana Mesquita e Silva, Physiotherapist 780-428-8842, 780-475-7968 fax Abrah o Quadros, Physiotherapist Rua Estado de Israel, 899 - VL. Clementino Sao Paulo, SP. Post-Polio Network (Manitoba) Inc +11 5571-3324, +11 5083-1051. SMD Self-Help Clearinghouse 204-825 Sherbrook St Winnipeg, Manitoba R3A 1M5. BRAZIL Support Groups 204-975-3037, 204-975-3027 fax Associa o Luso Afro-Brasileira de Poliomielite e S ndrome P s-poliomielite Polio New Brunswick Stepaway Polio Peter Hefferman Rua Pau Ferro 506-635-8932, Jardim Polio Northern New Brunswick A Associa o G-14 de Apoio aos Pacientes Claudia LeBlanc de Poliomielite e S ndrome P s-P lio 506-548-1919, Sao Paulo Polio Nova Scotia Faye Joudrey CANADA health Professionals c/o Abilities Foundation of Nova Scotia 3670 Kempt Rd K.

7 Ming Chan, MD, FRCPC, Professor Halifax, Nova Scotia B3K 4X8. Division of Physical Medicine & Rehabilitation 902-453-6000, Centre for Neuroscience 5-005 Katz Group Centre University of Alberta Ontario - Post-Polio Canada Edmonton, AB T6G 2E1 A Division of March of Dimes Canada 780-492-1614, Jennifer Cote 888-480-5903, *Montreal Neurological Institute & Hospital Daria A. Trojan, MD, Director, PM&R. Diane Diorio, MD, Neurology Grey Bruce Huron 3801 University St Sharon and George Rahn Montreal, QC H3A 2B4 519-364-3224, 514-398-8911, 514-398-2745 fax Diorio: 514-398-5034, 514-398-3972 fax Post-Polio Directory 2018 3. Niagara Chapter CHINA health Professionals Ron Speer 289 -891-8283 Fang Han, MD. Sleep Center, The People's Hospital Peking University North Bay Chapter No. 11 south Road Xizhimen Sharyn Emond Xicheng District, Beijing 100044. 800-263-3463 ext 7731 + 86 10-88324206, Chu, MD, MSc, FRCP, FCCP. Peterborough Chapter United Christian Hospital Sarah Baslas Dept of Medicine & Geriatrics 800-263-3463 ext 7738 Division of Respiratory Care 130 Hip Wo Street, Kwun Tong Kowloon, Hong Kong SAR.

8 Thunder Bay Chapter +852 3513 4822, +852 3513 5548 fax Sandy Rutherford Jianan Li, MD. Windsor & Area Chapter Director, Department of Rehabilitation Medicine Gayle & Bruce Tait First Affiliated Hospital of Nanjing 519-252-8248, Medical University Hamilton-Brant Chapter 300 Guangzhou Rd Northumberland Chapter Nanjing 210029. Sudbury Chapter Toronto Peel & York Chapter Keith Rashid CUBA Support Group 800-263-3463 ext 7213, Dr. Pedro Luis Gonzalez, Director Polio Prince Edward Islands ACUFIN. Stephen Pate Calle 8#10 Entre 17 y 902-566-4518, Reparto Libertad, Holguin Association Polio Quebec Gilles Besner CZECH REPUBLIC Support Group 514-489-1143, 514-489-7678 fax Asociace Polio Polio Association of the Czech Republic 877-765-4672 tollfree outside Montreal Ludvika Bradov . Kosmonaut 2288, 44001 Louny Polio Regina Inc. (Saskatchewan) +420 222962074, Carole Tiefenbach DEMOCRATIC REPUBLIC OF THE CONGO . Support Group Saskatchewan Awareness of Post-Polio l Association Congolaise Debout et Fier (ACDF).

9 Ron Johnson StandProud 306-477-7002, 306-373-2665 CHILE health Professionals DENMARK health Professionals Cl nica Los Coihues *Special Hospitalet Av Laguna Sur 6561,Estaci n Central Fjeldhammervej 8. Santiago 2610 Rod vre +56 2 24657900 +45 36 73 90 60. 4 Post-Polio Directory 2018 Merete Bertelsen, PT Service de M decine Physique et de R adaptation Lise Kay, MD GH Lariboisi re-F. Widal Special Hospitalet 200 Rue du Fbg St Denis Fjeldhammervej 8 75010 Paris 2610 Rod vre +33 1 40 05 42 05, +33 1 40 05 48 51 fax +45 36 73 90 44 GERMANY health Professionals DENMARK Support Group The following 5 clinics have been certified by Polio Foreningen Bundesverband Polio: Fjeldhammervej 8. *Rehaklinik Raupennest, Altenberg 2610 Rod vre Dr. med. Friedemann Steinfeldt +45 36 73 90 60, Rehefelder Str. 18. 01773 Altenberg FINLAND Support Group *Rheuma-Klinik Suomen Polioliitto Ry (Finnish Polio Association) Bad Bramstedt Neurologische Abteilung 1 A Kumpulantie 6th floor Prof Dr.

10 Med. Wolfgang-Ludwig Gross 00520 Helsinki rztlicher Direktor Fachkrankenhaus (09) 686 0990, Dr. med Andreas-Christoph Arlt rztlicher Direktor Rehabilitation FRANCE health Professionals Oskar-Alexander-Str. 26. 24576 Bad Bramstedt Dr. Vincent Tiffreau Service de M decine Physique et de R adaptation MCU-PH *Neurologisches Rehabilitationszentrum Quellenhof Centre de R f rence des Maladies Neuromusculaires Bad Wildbad du CHRU de Lille H pital Swynghedauw Chefarzt PD. CHRU de Lille Dr. Peter Flachendecker 59037 Lille Cedex Kuranlagenallee 2. +33 3 20 44 58 31, +33 3 20 44 58 32 fax 75323 Bad Wildbad Dr. Isabelle Laffont *Klinik Hoher Mei ner D partement de MPR CHU Lapeyronie Bad Sooden-Allendorf Neurologische Abteilung 371, avenue du Doyen Gaston Giraud Dr. med. C. Schr ter Leiter 34295 Montpellier Cedex 5 Neurologischer Abteilung +33 4 67 33 87 17, +33 4 67 33 86 71 Hardtstrasse 36. 37242 Bad, Sooden-Allendorf Dr. Raul Morales *Klinik Miriquidi D partement de Neurologie Thermalbad Wiesenbad, Gesamte Klinik CHU de Montpellier CH Frau Dr.