Transcription of Arthritis By The Numbers
1 - 1 - Arthritis By The NumbersIntroduction ..5 Section 1: General Arthritis Facts ..7o Human and Economic Burdens ..9- Economic 9- Employment Impact and Medical Cost Burden ..10 Osteoporosis ..12o Prevalence ..12o Human and Economic Burdens ..13- Health Burdens ..14 - Economic 2: Osteoarthritis (OA) ..16 # OA Patient Story Kathy Osteoarthritis (OA)o Prevalence ..19- US General Population ..19- Global Prevalence ..19o Human and Economic Burdens ..20- Health Burdens ..20- Knee, Hip and Shoulder OA Burden ..21- Economic Burdens ..22- Global Burden.
2 23o Military OA ..26- Prevalence in the Military ..26- Human and Economic Burdeny ..26- Global Burden for Military and Other Tactical Athletesy ..26 Section 3: Autoimmune and Inflammatory Arthritis ..28 # RA Patient Story Eileen Schneider ..30 Rheumatoid Arthritis (RA) ..31o Prevalence ..31o Human and Economic Burdens ..31- Health Burdens ..31- Work/Employment Impact ..32- Medical/Cost Burdens ..32 # SLE Patient Story Liz Morass ..33 Systemic Lupus Erythematosus (SLE or Lupus) ..34o Prevalence ..34o Human and Economic Burdens ..35- Comorbidities and Health Burdens.
3 35- Pregnancy Impact ..37- Work/Employment Impact ..37- Medical/Cost Burdens ..38 TABLE OF CONTENTSA rthritis Foundation Sj gren s Syndrome ..40o Prevalence (Primary Sj gren s Syndrome) ..40o Comorbidities (Secondary Sj gren s Syndrome) ..40o Human and Economic Burdens ..41 - Health Burdens ..41 - Work/Employment Impact ..45 - Medical/Cost Burdens ..45 Adult-onset Scleroderma ..46o Prevalence ..46o Human and Economic Burdens ..46 - Health Burdens ..46 - Economic Burdens ..47 Spondyloarthritis (SpA) ..48o General Prevalence.
4 48 Ankylosing Spondyloarthritis (AS) ..48o Prevalence ..48o Human and Economic Burdens ..48 - Health Burdens ..48 - Economic Burdens ..49 # PsA Patient Story Karen Lomas ..50 Psoriatic Arthritis (PsA) ..51o Prevalence ..51o Human and Economic Burdens ..51 - Health Burdens ..51 - Economic Burdens ..52 Section 4: Juvenile Idiopathic Arthritis (JIA) and Other Childhood Rheumatic Diseases ..54 Common Forms of Juvenile Arthritis (JA) ..55 # JIA/Juvenile-onset Fibromyalgia Patient Story Soler Family ..56 Juvenile Idiopathic Arthritis (JIA).
5 58o Prevalence ..58o Human and Economic Burdens ..59 - Health Burdens ..59 - Mental Health Impact ..60 - School and Social Impact ..60 - Economic Burdens ..60 Juvenile-onset Systemic Lupus Erythematosus (SLE or Lupus) ..63o Prevalence ..63o Health Burdens ..63 Arthritis Foundation- 4 - Juvenile-onset Scleroderma ..66o Prevalence ..66o Health Burdens ..66 Juvenile Myositis (JM) ..68o Prevalence ..68o Health Burdens ..68 Juvenile-onset Fibromyalgia ..70o Prevalence ..70o Health Burdens ..70 Section 5: Gout ..73 # Gout Patient Story Craig Buhr.
6 74 Gouto Prevalence ..75o Human and Economic Burdens ..75 - Health Burdens and Comorbidities ..75 - Gout in Women ..75 - Work/Employment Impact ..76 - Medical/Cost Burden ..76 Section 6: Fibromyalgia ..78 Fibromyalgiao Prevalence ..80o Human and Economic Burdens ..80 - Disease Triggers ..80 - Health Burdens ..80 - Economic Burdens ..81o Juvenile-Onset Fibromyalgia ..81 Conclusion ..82 References ..83 Appendix 1: Types of Arthritis ..94 Appendix 2: Arthritis Foundation-Funded Research ..95 Acknowledgements ..102 - 5 -INTRODUCTION I have stood on a mountain of Nos for one Yes!
7 B. Smith What you do speaks so loudly that I cannot hear what you say. Ralph Waldo EmersonThe Arthritis Foundation launched the Live Yes! Arthritis NetworkSM in October 2018 making connections possible, both in person and online, to empower people to live their best life. People with Arthritis can find strength in each other, manage stress and take control of their health care through informed choices. We each make the choices of whether, how and where to connect. As individuals, we search for what s right for each of us and to find our own, personal moments of Yes.
8 Of accomplishing what we want to s all about patients, researchers and health care providers working together to find answers that equip us to find new treatments and cures. We invite you to become part of the new Live Yes! Arthritis Network by visiting and taking part in local events, online forums and many other year we began to elevate the level of patient involvement in the creation of Arthritis by the Numbers . We believe patients must be fully integrated into everything we do, and that their diverse needs and outcomes, the ones that are most important to them, are represented.
9 We continue to grow that involvement in this third edition of Arthritis by the Numbers by adding: New sections and updating older sections, while trying to find answers to questions that were important to patients Facts from the Osteoarthritis Voice of the Patient report and the Lupus: Patient Voices report, as well as Arthritis Foundation survey data collected from Arthritis patients Patient reviewer stories, telling us how Arthritis .. and the facts they reviewed .. relate to everyday life. The 2019 edition of Arthritis by the Numbers includes three new sections and about 200 new and/or updated observations about Arthritis .
10 It can be used by a wide audience as a trustworthy set of verified facts, meant to inform patients and patient advocacy thought-leaders, elected officials, academics, drug/device industry professionals, rheumatology health care providers, researchers and many others. We re more powerful together! By prioritizing policies that further advance the needs of people with Arthritis , we can accelerate the science of finding better treatments and cures. We invite you to get started with us by flipping through the 2019 Arthritis by the Numbers . The power you have is to be the best version of yourself you can be, so you can create a better world.
