Autism Spectrum Disorders: Guide to Evidence-based ...

1 Sponsored by the Thompson Foundation for Autism ; the Division of Developmental Disabilities, Missouri Department of mental Health; the Office of Special Education, Missouri Department of Elementary and Secondary Education; and Mercy Children s Hospital St. Louis and SpringfieldA 2012 CONSENSUS PUBLICATIONG uide to Evidence-based Interventions Autism Spectrum Disorders: This publication was developed as a result of a partnership between the Thompson Foundation for Autism , the Office of Special Education of the Missouri Department of Elementary and Secondary Education, the Division of Developmental Disabilities of the Missouri Department of mental Health, Mercy Children s Hospital St. Louis and Springfield, and members of the Missouri Autism Guidelines Initiative. All rights under federal copyright laws are held by the Division of Developmental Disabilities except for those previously published materials included in this document.

2 All parts of this publication, except for previously published materials credited to the authors and/or publishers, may be reproduced in any form of printed or visual medium. Any reproduction of this publication may not be sold for profit or reproduction costs without the exclusive permission of the Division of Developmental Disabilities. Any reproduction of this publication, in whole or in part, shall acknowledge, in writing, the Thompson Foundation for Autism , the Division of Developmental Disabilities, the Office of Special Education, and Mercy Children s Hospital St. Louis and Springfield. This publication is available at no charge at from previously published articles included in this document are reprinted with permission from the author and/or publishers and are for personal use only. They may not be reproduced without the express written consent of the author and/or publisher.

3 Funding for the printing and dissemination of this Guide was provided in whole by the Missouri Foundation for Health. The Missouri Foundation for Health is a philanthropic organization whose vision is to improve the health of the people in the communities it serves. MO DivisiOn Of DevelOpMental Disabilities DepartMent Of mental HealtH Guide to Evidence-based interventions3A 2012 Consensus PubliCAtionGuide to Evidence-based Interventions Autism Spectrum disorders : Guide to Evidence-based interventionsiMissouri Autism Guidelines Initiative oversight CommitteeJoan E. Armstrong, MS, LPCJoel D. Bregman, MDJanet E. Farmer, PhD, ABPPDawn Huber, PhDMichele Kilo, MDJohn F. Mantovani, MDVicki McCarrell, MAKim Goodrich Ratcliffe, EdDAdvisory CommitteeJanice AmleshiSally Becker, OTR/LG. Elaine Beussink, MA, CCC-SLPR ebecca Blackwell, MA, BCBA, LBAC ynthia Bliem-Sharp, MSAmy Buie, MEd, BCBAJohn N. Constantino, MD Marilyn CoxJulie A.

4 Donnelly, PhDBeth Emmendorfer, EdDLisa Fowler-Koeppe, OTR/LJenny Frisbee, MA, BCBA, LBAJ ennifer GrayJohn M. Guercio, PhD, BCBA-D, CBIST, LBAL auree HeadConnie H bert, MS EdSusan Henderson, MSPatricia Kopetz, EdDRonald Kruse, EdDJulia LePage, MS, BCBALori Lewis, MS, CCC-SLP/MACM elinda Long, MS, CCC-SLPJ eanne Marshall, MEd, MA, BCBA, LBAB renda Martien, MS, CCC-SLP/MACS tacey Martin, MA, MACR olanda Maxim, MDMicah Mazurek, PhDDonald McCary, MS, BCBAV icky Mieseler, MS Victoria Moore, PsyDKaye Otten, PhDColin M. Peeler, PhD, BCBA-D, LBAS hula Portnoy, MDClaudia Preuschoff, MD, FAAPJena Randolph, PhDGregory R. Robinson, PhDRobin RussellDuru Sakhrani, MDKristin A. Sohl, MD, FAAPTodd Streff, MS, BCBAK eenan Stump, MS, SLPJoAnn Youngblood, PhDLaine Young-Walker, MDstAffKaren Bodenhorn, MPH, Project DirectorDawn Huber, PhD, Senior Project Staff WriterLee Falk, BJ, Communications DirectorRon Huff, PhD, Senior Project Staff ii Autism Spectrum disordersTable of ContentsAcknowledgments.

5 IvChapter 1: IntroduCtIon Introduction ..1 The Need for This Guide ..3 Overview of Evidence-based Practice ..5 Evidence-based Practice as a Framework for ASD Intervention ..6 Systematic Reviews Provide the Best Available Research to Support Evidence-based Practice ..7 Research Reviews that Inform This Guide ..8 Core Values of the Missouri Autism Guidelines Initiative ..9 Family-centered Care ..9 Early Intervention and Ongoing Support ..10 Informed Professional Judgment ..10 The Interdisciplinary Team ..10 Community Collaboration ..10 How to Use This Guide ..12 Chapter 2: Evidence-based InterventIon Introduction ..13 Importance of Community Collaboration ..15 Evidence-based Practice Provides a Framework for Effective ASD Intervention ..16 Best Available Research ..17 Individual Characteristics ..17 Professional Expertise.

6 18 The Intervention Process ..19 Step One. Conduct Assessment ..19 Essential Components of Assessment ..19 Step Two. Develop Intervention Plan ..22 Component One. Identify Component Two. Select Interventions ..24 Component Three. Determine Progress Monitoring Procedures ..24 Step Three. Monitor Progress ..25 Families and the Intervention Process ..26 The Intervention Process Across Service Delivery Systems ..27 Special Considerations for Service Delivery Systems ..30 Special Considerations for Healthcare ..30 Healthcare Case Example ..35 Special Considerations for Other Service Systems ..36 Other Service Systems Case Example ..37 Special Considerations in Public Education ..39 Case Examples Illustrating the Intervention Process in Public Education Systems ..45 Transitions Between Delivery Systems.

7 50 Medical and Healthcare Issues ..50 Educational Transitions ..51 Transition from School to Adult Services ..52 Transition Case Example ..53 Guide to Evidence-based interventionsiiiChapter 3: researCh Findings Introduction ..55 Importance of Systematic Reviews ..57 Overview: Six Systematic Reviews 2009-2011 ..58 Cross-cutting Implications ..62 Challenges of Drawing Conclusions Across Reports ..62 Methodology to Identify Effective ASD Interventions ..62 Effective ASD Interventions ..63 Goal Areas Targeted by Effective ASD Interventions ..71 Ineffective ASD Interventions ..73 Harmful ASD Interventions ..73 Other ASD Interventions ..74 Need for Additional Research ..74 Looking Ahead Toward New Research ..75 Description of Effective ASD Interventions ..75 Chapter 4: summaries oF researCh reviews Introduction.

8 115 Review Summaries ..116 National Professional Development Center (NPDC) ..117 Centers for Medicare and Medicaid Services (CMS) ..123 National Standards Project (NSP) ..147 Agency for Healthcare Research and Quality (AHRQ) ..163 Stanford Autism Research Team (StART) ..171 Comprehensive Treatment Models (CTM) ..176 BiBliography ..181appendiCes Appendix A: Missouri Autism Guidelines Initiative ..189 Appendix B: Glossary of Terms and Acronyms ..192 Appendix C: Effective ASD Interventions by Domain ..204 Appendix D: Resources for Parents and Professionals ..214 Appendix E: Sample Intervention Plan ..220index oF intervention names ..223 Case examples Healthcare Case Example ..35 Other Service Systems Case Example ..37 Case Examples Illustrating the Intervention Process in Public Education Systems ..45 Transition Case Example ..53iv Autism Spectrum disordersAcknowledgmentsAutism Spectrum disorders : Guide to Evidence-based Interventions is the result of a public-private partnership between the Thompson Foundation for Autism ; the Division of Developmental Disabilities, Missouri Department of mental Health; the Office of Special Education, Missouri Department of Elementary and Secondary Education; and Mercy Children s Hospital St.

9 Louis and Springfield. Working together as the Missouri Autism Guidelines Initiative, we are proud to have initiated the collaborative process between parents and professionals which has resulted in our second publication, the companion document to our 2010 publication, Autism Spectrum disorders : Missouri Best Practice Guidelines for Screening, Diagnosis, and Assessment. Together we thank and gratefully acknowledge:n Individuals and families who live with Autism Spectrum disorders (ASDs) and who are dedicated to identifying and securing high-quality, Evidence-based , effective interventions in their communities. We are grateful for the thoughtful input of the parents who participated in the development of this document. As with the Initiative s first publication, the insights of parents have made this book better and more accessible to families. n The community of professionals, including healthcare professionals, educators, and other service providers, who partner with families and each other in delivering quality ASD care.

10 The intervention process is enriched through their professional experience and their knowledge of each family they The ASD researchers who produced the six systematic research reports on which this document is based, especially those who led symposia for the Missouri Autism Guidelines Initiative to inform our thinking. These national experts challenged us to think more broadly and to expand our work to include the complex cross-cutting summaries that families and professionals most need. Lynne C. Huffman, MD, Associate Professor, Pediatrics, Stanford University School of Medicine and leader of the Stanford Autism Research Team (StART), Palo Alto, CA Samuel L. Odom, PhD, Director of Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill and Principal Investigator of the National Professional Development Center on Autism Spectrum disorders Hanna C.