EACD 2019

1 European Academy of Childhood DisabilityInnovation for participation May 23-25 2019 tiero AND CONCEPT TMSF rance Congress CenterLa Villette, Cit des Sciences et de l IndustrieParisUnder the High Patronage ofMr Emmanuel MACRONP resident of the French RepublicParisEACD 2019 Paris7h308h459h009h4510h4511h3012h4514h0 015h1515h3016h4517h3018h4520h00 AmphiGaston Berger(898 seats)AuditoLouis Armand Ouest(210 seats)AuditoLouis Armand Est(210 seats)Salle AB(60 seats)Salle CD(60 seats)Salle 1(70 seats)Salle 2(75 seats)Salle 3(75 seats)Salle 4(70 seats)IC ( )Developing a clinical practice guideline regarding functional therapy in cerebral palsyIC ( )The development and application of clinical knowledge in cerebral palsyIC ( )Building capacity in family engagement in researchIC ( )Upper limb and hand patterns classification in cerebral palsyIC ( )Clinical practice guidelines for characterization of spasticity, dystonia and choreoathetosis in CPIC ( )Visual function deficit: from early detection to early interventionIC ( )Multichannel neuromuscular stimulation: NMES-assisted gait for children with CPIC ( )Ecologically valid tools for the assessment of executive functions and attention among installation posturale au fil de l ge(CDI)( )Opening CeremonyKeynotes ( )Jan Willem Gorter, Farida BedweiChairperson: G.

2 CioniCoffee break and postersOC ( )Technology and assistive devicesChairpersons: Bryce Johnsonand St phane ArmandOC ( )Physical activitiesand community inclusionChairpersons: Christelle Pons-Becmeur and Dana AnabyOC ( )Progress in diagnosticsChairpersons: Erik Domell fand Mickael DinomaisEuropean DyskineticCP meetingMS ( )Assistive technology innovations for communication and mobility in CPMS ( )Multidisciplinary and patient-centered management in Arthrogryposis Multiplex Congenita (AMC)MS ( )The contribution of four French rare diseases networks to improve diagnosis, research and care in rare ( )ICF: a hands-on approach for clinicians and familiesIC ( )Participation: a means or an end? Applications of the family of participation related constructs for and postersNational Coordinatorslunch meetingSferhe General MeetingKeynotes ( )Roslyn Boyd, Leane Sakzewski,Sue Fletcher-WatsonChairperson: E. MonbaliuMS ( )The f-words in childhood disability: innovation & impact on ( )Motor therapies and fun !

3 Chairpersons: Philippe Toulletand Yannick BleyenheuftMS ( )Innovative robotic technology promotes neurorehabilitation: past, present and futureIC ( )Play ball! Getting children with disabilities onto the sports field with practitioner-led sports groupsIC ( )Early detection of high risk of cerebral palsy using the Hammersmith Infant Neurological Examination (HINE)IC ( )Movement disorder childhood rating scale: are there now adequate psychometer prproperties to use it in multicentreIC ( )Involving young persons and patients in clinical research : the experience of a young personsadvisory groupOC ( )AutismChairpersons : Stelios Georgiadesand Sue Fletcher WatsonEuropean family forumCoffee break and postersOC ( )Child and family - Session 1 Chairpersons: H l ne Le Tallecand Peter RosenbaumIC ( )PREP 101: an innovative environment-based intervention approachfor improving participation of childrenOC ( )Transition and lifespan perspectivesChairpersons: Fabienne Roumenoff and Jan Willem MS ( )Home-based bimanual training based on motor learning principles in children with unilateral cerebral ( )Eyes on communication.

4 A Delphi study to build consensus on content of clinical guidelines for ( )Prevention, evaluation and management of pain in people with cerebral palsyEACD national coordinators round table meetingIC ( )Innovations in infant assessment: an update on the prechtl general movementEuropean family forumEACDA nnual GeneralMeeting13h00 Thursday 23th May - Global timetable= Instructional Courses = Mini-Symposium = Oral Communications = By invitation only = Families ICMSOCCAPTION7h308h459h0010h0010h4512h00 13h0013h1514h1515h4516h3017h3018h45 AmphiGaston Berger(898 seats)AuditoLouis Armand Ouest(210 seats)AuditoLouis Armand Est(210 seats)Salle AB(60 seats)Salle CD(60 seats)Salle 1(70 seats)Salle 2(75 seats)Salle 3(75 seats)Salle 4(70 seats)IC ( )Managing pain to promote participation in individuals with cerebral palsyIC ( )Looking for guides of cognitive assessment in cerebral palsyIC ( )The Functional Communication Classification System (FCCS)..IC ( )Innovative approaches and adaptations to be considered in the diagnostic assessment for autism ( )Computer games for balance training in children with cerebral palsyIC ( )A toolbox for participation-focused therapy - practical guide for therapists to enable participation in physical activities for youth with physical disabilitiesIC ( )Posture and mobility: bridging the gap between research and practiceMusculation haute intensit : utopie ou r volution !

5 (CDI)( )Keynotes ( )Daphn Bavelier, Bryce Johnson Chairperson: C. NewmanCoffee break and postersOC ( )Cognition and speechChairpersons: Erik Domell fand Mathilde ChevigardEACD EPNS joint session ( ) The molecular basis of hereditary spastic paraplegiaChairperson: Christopher Newman and Leena HaatajaMS ( )Muscle health and function in cerebral palsy: what you need to knowMS ( )Imaging and hand function for an early diagnosis of unilateral cerebral palsy after asymmetric perinatal brain injury MS ( )Theoretical and methodological basis for international early intervention projectsOCESMAC EACD joint session ( ) Motion, EMG and sensorsChairpersons: Annemieke Buizerand Mathieu LempereurMS ( )Ageing with cerebral palsy: age trajectories of musculoskeletal, cardiometabolic, and psychological morbiditiesMS ( )Population-based surveillance of cerebral palsy indicates a decline in overall prevalenceMS ( )Ensuring stakeholder engagement in the creation of new digital platforms.

6 Knowing what tomorrow s needs are todayLunch and postersLaboratoire Roche sponsored symposium ( )Allergan sponsored symposium( )Lunch and postersNutricia sponsored symposium( )Lunch and postersKeynotes ( )Freeman Miller,Yannick BleyenheuftChairpersons: A. Buizerand E. Rodby-BousquetOC ( )Therapies, toxins and user-experiencesChairpersons: Guy Letellierand Oleh CashmarOC ( )Surgery and new knowledgeChairpersons: Bruno Dohinand Marek JozwiakMS ( )Ethical issues in neurodevelopment disability: an open forum on how to address themMS ( )Novel paradigms to assess spatial skills and perspective taking in action in ( )ImagingChairperson: Hans Forssbergand Mickael DinomaisMS ( )Innovation in assessments, diagnostics and classification of Cerebral Visual Impairment (CVI) OC ( )Service provisionand epidemiologyChairpersons: Arnab Sealand Catherine ArnaudMS ( )The contribution of MRI to our understanding of cerebral palsyMS ( )Clinically relevant outcome measures for patients with neuromuscular break and postersKeynote ( )Lee Ridley ( Lost Voice Guy )Chairperson: A.

7 SealAnnouncementsOC ( )Cerebral palsyChairpersons: Emilie Rumillyand Nana Nino TatishiviliMS ( )A global agenda for children with disabilities OC ( )New evidence in assessmentsChairpersons: Christelle Pons-Becmeurand Mathilde ChevigardMS ( )Genomics of cerebral palsy: perspectives on the impact of genomics on diagnosis, etiologic work-up,..MS ( )Long-term development into adulthood and personal experiences of participation of individuals with ( )Surgical management of spasticity in the upper limb: which surgery for which patients?OC ( )Visual sensoryChairpersons: Elegast Monbaliuand Vincent GautheronMS ( )Parents and professionals: we are in the same boat, but can we row in the samedirection ?..MS ( )Future twist in participation : why and how to promote meaningful participation of children and young adults with disabilities?12h1514h30 Friday 24th May - Global timetable17h0017h15= Instructional Courses = Mini-Symposium = Oral Communications = By invitation only = Families ICMSOCCAPTION7h308h459h0010h0010h4512h00 12h1513h00 AmphiGaston Berger(898 seats)AuditoLouis Armand Ouest(210 seats)AuditoLouis Armand Est(210 seats)Salle AB(60 seats)Salle CD(60 seats)Salle 1(70 seats)Salle 2(75 seats)Salle 3(75 seats)Salle 4(70 seats)IC ( )Early diagnosis of Cerebral Palsy (CP).

8 Translating the 2017 international ( )Towards assessment and intervention of swallowing and feeding in the child with cerebral ( )Occupational performance coaching with parents and teachers of children with neurodisabilityIC ( )A framework for developing clinical guidelines and polices in special schools and residential settingsIC ( )Urotherapy in incontinent children with cerebral palsyIC ( )Introduction into the neurological scale of the Standardized Infant NeuroDevelopmental Assessment (SINDA)IC ( )RaceRunning, innovation for participationIC ( )CP commons: an informatics platform for storing and sharing cerebral palsy clinical and genomic dataLa place des aides instrumentales respiratoires dans la r ducation du sujet PC(CDI)( )Keynotes ( )Arnold Munnich, Matthieu ChatelinChairpersons: I. Desguerreand GorterCoffee breakMS ( )Closing the gap between what cerebral palsy consumers want and what they get from researchOC ( )Health issues and childhood disabilitiesChairperson: Christopher NewmanOC ( )Child and family - Session 2 Chairpersons: Claire Do Ngoc Thanh and Therese MillarOC ( )Basic scienceChairpersons: Isabelle Desguerreand Sebastian GruntMS ( )What does the term motor learning-based treatment approach mean in theory and practice?

9 MS ( )Innovative technologies for early detection of neurocognitive compromise MS ( )The role of music in fetal and post-natal ( )Home-based assessment and rehabilitation of upper limb in children with unilateral cerebral palsyKeynote ( )Bernard DanChairperson: G. CioniClosing ceremony12h45 Saturday 25th May - Global timetable= Instructional Courses = Mini-Symposium = Oral Communications = By invitation only = Families ICMSOCCAPTIONT hursday 23th May - Amphi Gaston Berger Timetable - MORNINGIC: Developing a clinical practice guideline regarding functional therapy in cerebral palsy: utilising the GRADE and AGREE II framework - Iona Novak(Ref. 9369)Opening CeremonyMonika MakayKeynotes - Chairperson: Giovanni Cioni Turn the Tide on Transition to Promote Participation - Jan Willem Gorter How Cerebral Palsy gave me a career in Tech - Farida BedweiCoffee break and postersOC: Technology and assistive devices - Chairpersons: Bryce Johnson and St phane Armand8201 Critical reflection on walking devices for children with cerebral palsy (CP) and introducing an innovative walking aid providing alignment and enabling individually adjusted supportRia Cuppers 8971 The effect of different walking devices on body functions, activity and participation in children with cerebral palsy.

10 A systematic literature reviewJo Lebeer7619A wearable pediatric exoskeleton for progressive reduction of crouch gait in individuals with Cerebral Palsy (CP)Diane Damiano 9374 Innovative robotic walker promotes exercise and participation in adolescents with cerebral palsyAnna McCormick 8998 Comparing participation levels of children with CP According to use of orthosis and assistive devicesMintaze Kerem-G nel7940A randomized cross-over design evaluating the effects of using a rehabilitation-specific gaming software platform for the achievement of individual physiotherapy goals of children with severe spastic cerebral palsySophie Decavele7860 Eye-tracking technology in children with dyskinetic cerebral palsy: the efficacy of a five-week intervention on eye-tracking performance, quality of life and participationSaranda Bekteshi9219An evidence-based model for decision making in augmentative and alternative communication: findings from the I-ASC projectJuliet Goldbart7h308h459h459h0010h4511h3012h45 4 Thursday 23th May - Amphi Gaston Berger Timetable - AFTERNOONK eynotes - Chairperson: Elegast Monbaliu Active ingredients of rehabilitation for children with Cerebral Palsy - Roslyn Boyd Unmasking the black box of participation-focused therapy for children with cerebral palsy - Leane Sakzewski Merging psychological theory with a neurodiversity framework for better autism interventions - Sue Fletcher-WatsonMS: The f-words in childhood disability: innovation & impact on participation around the world - Peter Rosenbaum(Ref.)