Navigating the UCSF Helen Diller Family Comprehensive ...

1 Navigating the UCSF. Helen Diller Family Comprehensive Information, Support &. Cancer Center Resources Navigating the UCSF Helen Diller Family Comprehensive Cancer Center: Information, Support, and Resources T his guidebook would not have been possible without the contribution of numerous individuals throughout the cancer center, including staff, doctors, and nurses. A special thanks goes to members of the Patient and Family Advisory Council for their contribution. W. W e at UCSF understand that dealing with a cancer diagnosis, medical tests, and appointments may feel overwhelming. We know there is a lot of information to absorb and many decisions to make. The cancer center guide- book, Navigating the UCSF Helen Diller Family Comprehensive Cancer Center is designed to serve as a roadmap to the cancer center and provide you with an overview of its services and programs, as well as tips and suggestions to guide you through treatment.

2 We hope that you will use this information to access the people and programs that will be most helpful to you as your needs change. Thank you for trusting and partnering with the UCSF team for your cancer care. Ranked as the top cancer center in California, UCSF is known for its cutting edge research and treatment of cancer. These breakthrough treatments include ad- vanced immunotherapy treatments which train the body's own immune system to combat cancer, tailored treatments that target the molecular biology of cancer cells, and minimally invasive surgical procedures. These remarkable advances are only possible because of the exceptional UCSF. researchers, physicians, nurses, and staff who come together every day to serve our patients and families.

3 I sincerely hope that the care you receive here meets and exceeds your expectations. We are continually working to set a higher bar for the level of care we provide. If there is any way in which we can improve your experience here, please let us know by sharing your suggestions and feedback at I'd like to acknowledge the Patient and Family Advisory Council members whose ideas, suggestions, and language are woven into this guidebook. Sincerely, The artwork used in this guidebook was created by patients, families, caregivers, and medical staff during their journey through cancer in Art for Recovery, a program at the UCSF Helen Diller Family Comprehensive Cancer Center.

4 Alan Ashworth, PhD, FRS. President, UCSF Helen Diller Family Comprehensive Cancer Center 3. Symptom Management Therapy & Doctors Counseling & Nurses Nutrition Counselors Interpreters Support Fertility Groups &. Specialists Peer Support Patient Exercise Relations Parking Counselors Info &. Shuttle Services You Are Not Alone. There are many people and services here to help you navigate your cancer journey. Navigating the UCSF Helen Diller Family Comprehensive Cancer Center: Information, Support and Resources C ancer is a reminder that our life can be derailed and can wrest control away from us. Learning to befriend uncertainty, to feel comfortable in that gray area of not knowing, can help manage anxiety.

5 Table of Contents When feeling overwhelmed by all the un- Important Phone 9. knowns, it is helpful to focus on the present and to rest Your Health Care in the moment-to-moment experience of breathing. Preparing for Your 25. B efriending uncertainty means living life Financial 29. knowing that it is finite, while recognizing that no ABC's of Cancer: Definitions, Test, and 31. one knows with certainty how long we have to live. UCSF Programs and 41. And it is this realization that makes each day precious and worth living as fully as possible. Living Life Now: Planning for the 55. Finding Your Way Around UCSF - Maps and 59. An online PDF of this guidebook can be found at 7.

6 Important UCSF Phone Numbers and Websites UCSF Operator- 415-476-1000. (Directs you to UCSF staff, UCSF departments, and to patients in the hospital.). Program Telephone Website Art for Recovery 415-885-7221 Bridges: Home-based 415-514-3577. Palliative Care Cancer Genetics and 415-885-7779 education/cancer_genetics_. Prevention Program and_prevention_program Cancer Resource Center, Ida and 415-885-3693 Joseph Friend Clinical Trials 877-827-3222. clinical-trials 9. Program Telephone Website Program Telephone Website Imaging Library/Film Exercise Classes 415-353-3693 Library (to obtain copies crc/exercise-classes 415-353-1640 of CDs with images from Radiology).

7 Exercise 415-514-6430 services/cancer_exercise_ Mount Zion Consultation counseling 415-353-7155 org/clinics/ida_friend_infu- Mission Bay sion_center Infusion Center 415-353-7155 Fertility Preservation 415-353-9115 Program Parnassus clinics/infusion_center_at_. 415-353-2272 mission_bay Financial Counseling Call the Practice (insurance questions 415-353-1966 Interpreting Services where you are and cost estimates for billing_and_records services/interpreters getting care treatments). Legacy Project Financial Services (understanding medical Lymphedema bills, arranging payment 866-433-4035. billing_and_records Management 415-353-7908. plans or requesting financial assistance) and Risk Reduction Medical Records (to obtain copies of 415-353-2221 billing_and_records/medi- Fishbon Library - Health your records) cal_records Information for Patients 415-885-7285.

8 Org and Families Meditation and 415-885-3693 crc/meditation-and-guid- Friend to Friend Guided Imagery 415-353-7776 ed-imagery Gift Shop 10 11. Program Telephone Website Program Telephone Website My Chart 415-514-6000 ucsfmychart Psycho-Oncology team 415-353-7019. psycho-oncology New Patient and Care- 415-885-3693. giver Orientation Radiation Oncology 415-353-7175 (radiation treatment). Notes Project 415-885-7671. (recording memories) Radiology 415-353-2573 (imaging, scans). Nutrition 415-502-5547 crc/nutrition-counsel- Security 415-885-7890. Consultation ing-and-workshops Smoking Cessation 415-885-7895. cotreatment Nutrition Workshops 415-885-3693 crc/nutrition-counsel- ing-and-workshops Social Work (You will be directed to 415-885-3693.)

9 Support-services Osher Center for a social worker). 415-353-7700 Integrative Medicine Mount Zion and Parnassus Patient Relations Office 415-353-1936 Spiritual Care services/patient_relations 415-353-1941 Services Mission Bay 415-514-4200. Patient Support Corps 415-353-8400 Support Groups 415-885-3693. crc/support-groups Peer Support 415-885-7210. Program crc/peer-support 12 13. Program Telephone Website Your Medical Team and Surgery Wellness Other Important Numbers 415-476-3474. Program wellness-program Survivorship Wellness 415-353-3931. Program port/survivorship-wellness. Symptom 415-885-7671. Management Service sms Transportation 415-476-1511. and Parking 415-476-4646.

10 UCSF Shuttle Service (GOGO). tion/shuttles Mount Zion 415-885-7255. Parnassus Wheelchair Escort 415-353-1664. Mission Bay 415-476-1540. 14 15. Your Health Care Team Getting cancer has made me realize that every day I have is precious. I feel I owe it to myself to make the most of this incredible gift of life.. ~ Kelley You, Your Family , and Friends We at UCSF understand that you are the most important member of our healthcare team. We want to make sure that you and your loved ones fully understand and feel secure about your treatment plan. We encourage you and your caregivers to ask any and all questions that will help you clarify your treatment options and get whatever information you need to feel comfortable moving forward.