Valuing People - GOV.UK

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2 Edinburgh EH3 9AZ0870 606 5566 Fax 0870 606 5588 Accredited Agents(see Yellow Pages)and through good booksellersA New Strategy for Learning Disabilityfor the 21st CenturyValuing People :Cm 5086 Valuing People : A New Strategy for Learning Disability for the 21st Century75629-DOH-LearnDifficulty COVER 20/3/01 4:37 PM Page 1iValuing PeopleA New Strategy for Learning Disabilityfor the 21st CenturyA White PaperPresented to Parliament by the Secretary of State for Health byCommand of Her Majesty March 2001Cm 5086 Foreword by the Prime Minister 1 Executive Summary2 Preface 10 Part One: Where we are Now13 Chapter One:Problems and Challenges 14 What is Learning Disability?

3 14 How many People have learning disabilities? 15 Future Numbers 16 Developments Since 1971 16 Services and Expenditure 18 Problems Facing Learning Disability Services 19 The Way Forward 22 Chapter Two:The New Vision 23 Key Principles: Rights, Independence, Choice, and Inclusion 23 Our Values 24 Government Objectives for Learning Disability Services 25 Action for Change 27 Part Two: Better Life Chances for People with Learning Disabilities 29 Chapter Three:Disabled children and young People 30 Problems and Challenges 30 What more needs to be done 32 Quality Protects Programme 33 Education Services 34 Residential Placement37 Early Years Developments38 Cross Government Programmes for Children and Young People 39 Health Services 40 Transition into Adult Life41 Problems and Challenges 41 What more needs to be done 42 Young People and Person-centred Planning 42iiiChapter Four.

4 More choice and control for People with learning disabilities 44 Problems and Challenges 44 What More Needs To Be Done 45 Disability Rights Commission 46 Advocacy 46 Direct Payments 48 People with Preserved Rights 49A Person-Centred Approach to Planning 49 Chapter Five:Supporting Carers 53 Problems and Challenges 53 What More Needs To Be Done 54 National Carers Strategy 54 Implementation of the Carers and Disabled Children Act 2000 55 Excluding People from Services 55 Information for Carers 56 The Carers Grant57 Chapter Six:Improving health for People with learning disabilities 59 Problems and challenges 59 What More Needs To Be Done 61 Reducing Health Inequalities 61 Meeting Health Needs 63 Specialist Learning Disability Services 68 Chapter Seven.

5 Housing, Fulfilling Lives and Employment 70 Housing 70 Problems and Challenges 70 What More Needs To Be Done 72 Expanding Choice in Housing, Care and Support Services 72 Housing Advice and Assistance 74 The NHS as Housing Provider 75 Fulfilling Lives 76 Problems and Challenges 76 Modernising Day Services 76 Education and Lifelong Learning 78 Transport 80 Leisure and Relationships 80 Parents with a Learning Disability 81 social Security Benefits 82 Moving into Employment 84 Problems and Challenges 84 What More Needs To Be Done 85 New Targets and Incentives 85 Workstep: Reforming the Supported Employment Programme 86 Local Employment Strategies 88 Better Employment Opportunities in the Public Sector 89ivValuing People : A New Strategy for Learning Disability for the 21st CenturyChapter Eight.

6 Quality Services 90 Quality 90 Problems and Challenges 90 What More Needs To Be Done 91 Care Standards Act 2000 91 The social Care Institute of Excellence (SCIE) 92 Local Quality Frameworks 92 Resources and Best Value 95 Workforce Training and Planning 96 Problems and Challenges 96 What More Needs To Be Done 97 Health and social Care Workforce Strategies 97 Learning Disability Awards Framework (LDAF) 98 People with Additional and Complex Needs 100 People with severe and profound disabilities 100 People with epilepsy 101 People with learning disabilities and autistic spectrum disorders 101 People with learning disabilities who have challenging behaviour 103 Older People with learning disabilities 103 Part Three: Delivering Change 105 Chapter Nine:Partnership Working 106 Problems and Challenges 106 What More Needs To Be Done 107 Partnership Boards 107 Health Act Flexibilities 109 Chapter Ten:Making Change Happen 111 National Action 111 Local Action 115 Delivery Plan 116 Conclusion 119 Annexes 121 Annex A.

7 Objectives and sub-objectives, targets and performance indicators 122 Annex B:Glossary 132 Annex C Bibliography 134 Annex D:Advisory Groups and Working Groups 137vContentsviValuing People : A New Strategy for Learning Disability for the 21st CenturyFOREWORD BY THE PRIME MINISTERP eople with learning disabilities can lead full andrewarding lives as many already do. But othersfind themselves pushed to the margins of oursociety. And almost all encounter prejudice,bullying, insensitive treatment and discriminationat some time in their lives. Such prejudice and discrimination no less hurtfulfor often being unintentional has a very damagingimpact.

8 It leads to your world becoming smaller,opportunities more limited, a withdrawal from wider society so time isspent only with family, carers or other People with learning disabilities. What s also a real cause for concern and anxiety is that many parentsof learning disabled children face difficulties in finding the right care,health services, education and leisure opportunities for their sons anddaughters. At best, they can feel obstacles are constantly put in theirway by society. At worst, they feel abandoned by the rest of us. We have to change this situation if we are to achieve our goal of amodern society in which everyone is valued and has the chance toplay their full part.

9 There has been progress often through theefforts of families, voluntary organisations and People with learningdisabilities themselves. But a great deal more needs to be done. This White Paper sets out this Government s commitment toimproving the life chances of People with learning shows how we will meet this commitment by working closelywith local councils, the health service, voluntary organisations andmost importantly with People with learning disabilities and theirfamilies to provide new opportunities for those with learningdisabilities to lead full and active lives. I know the publication of a White Paper, however good its proposals,does not itself solve problems.

10 The challenge for us all is to deliver thevision set out in this document so the lives of many thousands ofpeople with learning disabilities will be brighter and more is a challenge I am determined this Government will meet. 1 EXECUTIVE SUMMARYP eople with learning disabilities are amongst the most vulnerableand socially excluded in our society. Very few have jobs, live in theirown homes or have choice over who cares for them. This needs tochange: People with learning disabilities must no longer bemarginalised or excluded. Valuing Peoplesets out how theGovernment will provide new opportunities for children andadults with learning disabilities and their families to live fulland independent lives as part of their local we are todayProblems and ChallengesThere are about 210,000 People with severe learning disabilities inEngland, and about million with a mild or moderate and social services expenditure on services for adults withlearning disabilities stands at around 3 billion.