A HANDBOOK ON MAINSTREAMING DISABILITY A ... - …

1 VSO United Kingdom317 Putney Bridge RoadLondon SW15 2 PNTel: +44 (0) 20 8780 IndonesiaPO Box 3212 Denpasar 80002 BaliIndonesiaA HANDBOOK ON MAINSTREAMING DISABILITYA HANDBOOK ON MAINSTREAMING DISABILITY1 VSO S STATEMENT OF VALUESVSO believes that everyone must be able to exercisetheir fundamental human rights. VSO aims to support disabled people in exercising theirrights, and to promote their full inclusion and activeparticipation as equal members of their families,communities and societies. Focus for Change, VSO s Strategic Plan 2002 VSO is committed to tackling disadvantage andexclusion by empowering disadvantaged people toclaim and exercise their rights.

2 For VSO staff and volunteers working in DISABILITY , this means promoting the full inclusion and activeparticipation of disabled people within their families,communities and societies. To pursue this aim, wealways work in partnership with disabled people sorganisations, as well as a range of other organisationsdepending on the context of each programme. All VSO staff and volunteers are expected to pursuetheir work in line with VSO s beliefs and values. This means: not discriminating ourselves against anyone on the basis of DISABILITY or any other factor promoting equity, non-discrimination and the inclusion and participation of disadvantagedpeople, including disabled people, in our own workand that of VSO s partnersThis book was written by Daniel Jones and Li Webster, with additional material written byFiona Smith, Nina Doyle, Tracey Martin and Vivian Andyka of VSO DREAM-IT.

3 Research: Daniel Jones, Dorine Thomissen and Vivian AndykaEditing: Li WebsterDesign: Solid Colour LtdThanks to all the VSO programme staff and volunteers who generously contributed theirexperiences and lessons to this HANDBOOK ; to VSO s Programme Learning & Advocacy team forexperiences from MAINSTREAMING HIV & AIDS and gender, especially Lorna Robertson; andmost importantly, to all the DISABILITY partner organisations and disabled people who sharedtheir experiences and perspectives with the research and writing NOTE ON LANGUAGEIn all our DISABILITY work, VSO seeks to be guided by disabled people.

4 This includes the languagewe use. In general, this HANDBOOK refers to disabled people , because this is the phrase usedby Disabled People s International, the worldwide network of disabled people s movements. In many countries where we work, the national DISABILITY movement uses different language for example, people with disabilities is very common in English speaking partners in Indonesia use diffable , to highlight that DISABILITY is not the same asnot being able. As far as possible, case studies use the language preferred in that HANDBOOK is not intended to create a standard terminology for VSO.

5 In each country, VSOshould use the same language as the national DISABILITY movement. This publication has been produced with the assistance of the European contents of this publication are the sole responsibility of VSO and can inno way be taken to reflect the views of the European S STATEMENT OF VALUES1 ABBREVIATIONS4 INTRODUCTION5 CHAPTER 1:OVERVIEW6 Key messages6 What is DISABILITY ?6 What is MAINSTREAMING ?8 The MAINSTREAMING model8 Why mainstream DISABILITY ?9 DISABILITY programmes9 Non- DISABILITY programmes10 Key resources13 CHAPTER 2:DISCRIMINATION, STIGMA AND INTERACTING WITH DISABLED PEOPLE14 Key messages14 Discrimination14 Fear14 Invisibility and ignorance15 Stigma15 DISABILITY and other forms of discrimination17 Challenging discrimination18 Interacting with disabled people19 Interacting with people with mobility impairments19 Interacting with people with hearing impairments20 Interacting with people with visual impairments20 Interacting with people with learning difficulties21 Language22 Case studies231.

6 VSO Indonesia: enabling a disabled man to participate in his community232. VSO Papua New Guinea: disabled people challenging discrimination23 CHAPTER 3:ORGANISATIONAL COMMITMENT26 Key messages26 Practical advice and lessons26 Case studies293. VSO Thailand: developing a focus on inclusion29 Key resources33 CHAPTER 4:SENSITISATION34 Key messages34 Practical advice and lessons34 General34 Informal interaction with disabled people35 DISABILITY equality training36 Practical skills training39 Follow ups39 Case study404. VSO Indonesia: sensitisation40 Key resources43A HANDBOOK ONMAINSTREAMING DISABILITY32 CHAPTER 5:WORKPLACE MAINSTREAMING44 Key messages44 Practical advice and lessons44 Recruiting disabled people44 Office environment46 Staff46 Policies and processes47 Accessible communication and documents49 Review and follow-up50 Case studies505.

7 VSO Indonesia: office adaptation and secondments506. VSO India: staff sensitisation, office adaptation and recruitment527. VSO UK: disabled volunteers558. VSO The Philippines: working with Deaf volunteers and Deaf partners58 Key resources59 CHAPTER 6:PROGRAMME MAINSTREAMING : INCLUDING DISABLED PEOPLE INPROGRAMME MANAGEMENT PROCESSES60 Key messages60 Practical advice and lessons60 Who to involve and how60 Where to involve them62 Making meetings and workshops accessible66 Case studies699. DREAM-IT evaluation exchange6910. VSO Namibia: Project Steering Committee and Project Management Team7111. VSO The Gambia: strategic planning and programme development72 Key resources74 CHAPTER 7:PROGRAMME MAINSTREAMING : INCLUDING DISABLED PEOPLE IN OTHER PROGRAMME AREAS AND SECTORS76 Section 1: General76 Key messages76 Practical advice and lessons76 Planning78 Persuading78 Doing79 Reviewing and follow-up80 Section 2: Programme MAINSTREAMING : education programmes81 Key messages82 Practical advice and lessons82 Planning83 Persuading83 Doing85 Reviewing and follow-up86 Case study8712.

8 VSO Namibia: inclusive education87 Key resources88 Section 3: Programme MAINSTREAMING : HIV and AIDS programmes89 Key messages89 Practical advice and lessons89 Planning89 Persuading90 Doing90 Reviewing and follow-up91 Case Studies9113. VSO Ghana: Protect Yourself9114. VSO Namibia: HIV & AIDS and disability92 Key resources:95 Section 4: Programme MAINSTREAMING : other goals96 Key messages9754 IntroductionPractical advice and lessons97 Planning97 Persuading97 Doing98 Reviewing and follow-up98 Case studies9815. VSO Indonesia: Programme Area Plan Development9816. Pakistan and Sri Lanka: emergency relief100 Key resources100 CHAPTER 8:POLICY102 Key messages102 Practical advice and lessons102 VSO as facilitator102 Effective advocacy104 Allies106 Media107 Research107 Case studies10917.

9 VSO DREAM-IT: Fifth Asia-Europe People's Forum (ASEM-PF 5)10918. VSO Ghana: PRSP consultation11119. VSO Kenya: PRSP consultation and Constitutional review112 Key resources112 ASO AIDS service organisationCBR community-based rehabilitationCRCUN Convention on the Rights of the ChildDPO disabled people s organisationDREAM-ITDisability Rights, Empowerment, Awareness & Mobilisation Indonesia & ThailandEARCE ducation Assessment & Resource CentreHBChome-based careINGO international non-governmental organisationIPGVSO International Programmes GroupMDG Millennium Development GoalNGOnon-governmental organisationPAP Programme Area PlanPRSP Poverty Reduction Strategy PaperRPMR egional Programme ManagerVSO-RAISAVSO s Regional AIDS Initiative of Southern AfricaABBREVIATIONSThis HANDBOOK aims to give practical guidance to support development organisations tomainstream DISABILITY into their work.

10 It is primarily intended for VSO programmes, butcould be useful to other development actors interested in MAINSTREAMING DISABILITY , such asNGOs, government and donors. The HANDBOOK is drawn from the experience of VSO DREAM-IT ( DISABILITY Rights,Empowerment, Awareness & Mobilisation Indonesia & Thailand), a five-year disabilityprogramme carried out jointly by VSO Indonesia and VSO Thailand. MAINSTREAMING has beena key theme of this programme from the team from DREAM-IT and VSO International reviewed the lessons from DREAM-IT for thishandbook. We interviewed VSO programme staff, volunteers and partner organisations,including disabled people s organisations (DPOs) from around the world, to gather theirexperiences of MAINSTREAMING .