GUIDE BOOK FOR PROGRAMME HUBS AND …

1 GUIDE book FOR PROGRAMME HUBS AND SCREENING CENTRES NHS Bowel Cancer Screening PROGRAMME Version 3 31 March 2008 PREFACE ACKNOWLEDGEMENTS FURTHER INFORMATION 1. PROGRAMME OVERVIEW Background 1 Aims and objectives of the screening PROGRAMME 1 The screening process 2 Organisation of the screening PROGRAMME 4 Screening policy 6

2 National IT system (BCSS) 7 BCSS-generated letters 8 Call and recall 8 Informed choice 8 Confidentiality and data protection 9 Telephone helpline

3 9 Information for screening participants 9 Information for primary care 9 PROGRAMME publicity and communications with the media 10 Contacts directory 10 Financial arrangements 10 Accountability 10 Monitoring PROGRAMME performance 11 Cancer waiting times 11 Quality assurance 11 Adverse incident alert to national office 11 Audit and evaluation 11 Advisory Committee

4 12 2. SETTING UP A SCREENING CENTRE Selection of screening centres 13 Name of screening centre 13 Planning screening centre services 13 Screening centre budgets 16 Forecasting workload

5 16 BCSS site set up 17 BCSS user training 17 Setting up SSP clinics 18 Setting up screening colonoscopy sessions 18 Screening centre stationery 19 Information for primary care 19 PROGRAMME publicity 19 Arrangements for data collection 20 PIAG sign up 20 Additional colonoscopy

6 Sites 20 3. STAFFING A SCREENING CENTRE Clinical team 21 Staffing and accountability 21 Education and training for SSPs 24 Administrative support 25 4.

7 SPECIALIST SCREENING PRACTITIONER (SSP) CLINICS Booking SSP clinic appointments 26 Preparing for SSP clinics 26 During the SSP clinic 26 Patients who are on warfarin therapy 27 Patients who may need admission before or after colonoscopy 27 Patients who may need transport following colonoscopy 27 Patients who are unfit for colonoscopy 27 Patients who decline further investigations 27 Patients who do not attend 28 Recording

8 Clinic outcomes 28 SSP follow up clinics 28 Follow up patient questionnaires 28 5. SCREENING COLONOSCOPY SESSIONS Endoscopy lists for screening patients 29 Standards for colonoscopy 29 Links with pathology 29 Links with radiology 30 Giving patients the results of colonoscopy 30 Polyp surveillance

9 31 Referral of patients with suspected cancer 31 Referral of patients with other findings 31 Completion of datasets 31 GLOSSARY OF TERMS USED IN THE BCSP 32 REFERENCES 37 APPENDIX 1: PROGRAMME HUBS AND CURRENT SCREENING CENTRES 37 APPENDIX 2: SPECIFIC TASKS FOR PROGRAMME HUBS 39 APPENDIX 3: SPECIFIC TASKS FOR SCREENING CENTRES 41 APPENDIX 4: ORDERING OF INFORMATION MATERIALS 42 APPENDIX 5: PRIMARY CARE (GP) INFORMATION PACKS 45 APPENDIX 6: PROGRAMME INFORMATION AND MEDIA COMMUNICATIONS 46 APPENDIX 7: BOOKING BCSS TRAINING 47 APPENDIX 8:DESIGN OF LETTERHEADS FOR SCREENING CENTRES 48 APPENDIX 9: COLONOSCOPY QA STANDARDS 49 PREFACE This GUIDE book is based on the experience of the PROGRAMME hubs and first wave screening centres from July 2006 to January 2008.

10 It builds on the guidance first published in July 2006 in Version 1 of this GUIDE book and revised in Version 2 published in April 2007. It gives an overview of the NHS Bowel Cancer Screening PROGRAMME (NHS BCSP) and sets out the processes for screening centres to follow between having a bid accepted and starting screening. It also serves as a GUIDE for screening centres to ensure that they operate to a common set of policies and procedures. The GUIDE book will be published on the BCSP website ( ), and will be developed as experience of running the national PROGRAMME becomes available. In particular, a set of procedures notes will be published based on practical experience from the PROGRAMME hubs and first wave screening centres.